Thursday, December 17, 2009

Abie Ba-Baby.

That's what we've taken to calling Abe. Abie. Or Abie BaBaby. Did you think we could just let Abe stick? Oh no... that would be far too easy.

I've been dreading this blog post because there is so much going on with Abe I don't really know where to start. First, thankfully, Abie Bababy is starting to make progress on a few of the things we've been worried about. He is now rolling over onto his back and onto his tummy (this one is a strange and slightly uncomfortable looking activity). He doesn't do it a lot, but he does it and that's what counts. After Thanksgiving, he also started to reach for things. It was very slow at first, but we could tell there was intention in his movements and, sure enough, he's now reaching for items that dangle from his playmat, he reaches for toys we place on his high chair tray, and I caught him trying (slowly and methodically) to reach for Anna's arm this week.

You cannot believe how happy this makes us. We were quite worried that he didn't have any interest in touching anything, which caused our physical therapist some worry also. She recommended Abe undergo a sensory integration audit because she was afraid he was overly sensitive and that it may actually be physically uncomfortable for him to touch things.

The sensory integration audit did not point to any issues, but the occupational therapist does believe that Abe is delayed enough that we should enroll him in the state early intervention program. I've already met with the intake director and we will have an assessment sometime in the next week or two. Early intervention is a home-based therapy program where the therapists come to our house and help me learn how to work with Abe. This will mean no more driving to Naperville with Anna in tow. It's been really challenging because I've had to schedule his appointments in the afternoon during Anna's nap time and, as you can imagine, she's already very clingy and demanding about my attention so if she skips her nap it gets even worse. Right when I'm supposed to be paying attention to Abe, I have to stop and address Anna's needs also. It's just tough. Plus, Naperville is about 30 minutes away and that's a commute I'd love to avoid.

Of course, I had to stop and have a good cry when they told me we needed to get him into EI. There's just something about it that feels difficult to me, it's like acknowledging that there could be long term issues we have to address, which I've so far managed to push out of my mind. I have been focusing on only the next step before us because thinking about more far reaching developmental issues overwhelms me to the point I can barely breathe. The constant, begging prayer to God that he just be alright, just be alright, just be alright, is never far from my mind. I know that I'm not supposed to beg God for what I want, but I can't help this one. It's what we as mothers do when our children are sick or hurt or may need help beyond our understanding.



So for now I'm hoping that these therapists will have all the answers and provide me with direction to help get Abe caught up. Of course, that's only one part of the puzzle that is Abraham. The other challenge we're dealing with right now is that Abe is covered in eczema.

Eczema. I hate that word. We've officially been tackling his eczema for nearly 5 weeks. It started before Thanksgiving, he broke out in this TERRIBLE rash everywhere. After a visit to the doc, we switched Abe to a hypoallergenic formula (the thought was he might be allergic to dairy) and we started using a prescription hydrocortizone cream that clears it up nicely... but it still keeps coming right back. Currently, I'm using the cream every third day or so and then slathering him with Eucerin cream twice a day. And I mean SLATHERING him.

I've switched him to oatmeal rather than rice (based on some reading we did about what can be included in baby rice cereals), but that hasn't made a difference. We've ensured all his clothes are washed in a completely additive free soap (but that was already happening because of my cloth diapering regimen, which I've stopped doing for now, BTW). He's had green beans, peas and carrots, but the skin stuff has never really gone away long enough for me to tell if he's had any reactions to these foods. I tend to think not because there are no remarkable differences in his skin when he eats these items. So now I'm cutting dairy out of my diet to see if it makes a difference.

People, cutting dairy out of my diet is going to push the limits of my sanity, I fear. Do you know what I look forward to every morning? Greek yogurt, with fruit and agave nectar. Do you know what I drink every night and throughout the day? Milk. Lots and lots of milk. Oy. Why is dairy such a common allergen? Why? Why? Why?

Thankfully, Abe has slept through the night four days in a row now and I'm getting a bit more sleep. If it weren't for that I might just throw in the towel. However, I'm very happy about this development and since I love this little guy so much I'm willing to give the dairy-free diet a try.

So drink one for me, folks. Milk, that is.

6 comments:

Kate said...

I'll drink 2 or 3 for you.

Abie Bababy. I like it.

I'm sure the EI must be stressful but that would be great if they could come to you instead of you going to them!

Try not to worry yourself sick. He is going to be just fine. Really, he is. (How do I know this? I don't know. I just do.) : )

As for the pleading prayers - sister, you're doing better than me, because I have actually prayed for June to stop throwing up all over me so much. As if that's not the most selfish, simple-minded prayer you've ever heard. I would be so grateful for that prayer to be answered, though!

Very well written post, I might add. : )

Susan said...

Oh, Maggie, I’m sorry you’re having so many issues with little Abie Bababy! I agree with Kate – He’ll be okay! And definitely don’t worry…it doesn’t help anything and just takes away your time and energy.
I’ve actually heard really good things about E.I. so I hope yours is a good experience. I hear they are great and I know of kids who are two or three now and right back on track after using E.I. when they were younger.
And pray, pray, pray! There is NOTHING wrong with that. God loves to hear our concerns and for us to voice to Him what’s on our hearts. He tells us to pray without ceasing….I try to remember to turn whatever I’m thinking about into a prayer (doesn’t happen a lot of the time, but sometimes and it feels nice). So, if you’re thinking about Abe (which you obviously are a lot of the time), then just pray. And pray for yourself, too, for the peace, energy, encouragment, etc…. you need to get through this. I’ll pray, too :)

Ann Price said...

Love this post because it just sounds like you. From the heart. And I wish I had a magic ball to show you the future, but somehow, you'll get there and I bet this will all be a distant foggy memory. Can't wait to meet the family and hopefully soon!!

Sarah said...

Hey Maggie!
He is too cute. I was just going to let you know, I've been complaining about eczema to my OB and she recommended a bleach bath. It sounds horrible (esp for a little one!) but apparently there are new studies out about it and she said it's the only thing that works for her little infant. I've started a spot treatment on my hand and it is overly drying but no worse than the eczema itself and if you use the lotions too...
The food modifications may help too, but I just thought I'd let you know in case it works!
Love the Christmas decs!

Jillian said...

Hey, Maggie. It's Jenifer Giller. I know we haven't spoken in a million years, but I follow your blog. (Almost as good as keeping in touch, right?) Anyway, I'm keeping you in my thoughts with everything going on with Abe and just wanted to mention that we did AI for Jillian last year. They diagnosed her with a 50 percent speech delay and came to the house once a week. Our therapist was PHENOMENAL and totally amazing that she came to our house for something like $30 a session, out of pocket. Good luck with the program!

Cindy said...

Just catching up on my blog reading from the holidays. I also agree with Kate. I'm sure he'll be fine. Kids outgrow so many things. These "milestones" are all averages anyway. Who wants to be normal? It's so boring. Plus, Abe has such a sweet, good little personality. It's impossible to imagine he'll be anything but great.

My nephew is in EI (or equivalent in CO) for speech now and he loves it. It's also helped quite a bit.